To mark World Scleroderma Day we're pleased to be able to share Ilaria's story.

Now 43, Ilaria was originally diagnosed with systemic sclerosis in her early 20s. She explains that “at the beginning I focused on what I couldn’t do... Now I say, okay, I can’t do those things anymore and I try to find something else, something new.”

For more of Ilaria's honest insights into living with systemic sclerosis, watch the video above.