Have you heard of systemic sclerosis of scleroderma? If not, you are not alone.

Systemic sclerosis, sometimes referred to as scleroderma, is a disfiguring, disabling and potentially fatal rare disease. It can be difficult to diagnose and affects mostly women in the prime of their lives, between 25 and 55 years of age.

Each person’s experience of the disease is unique, and symptoms can vary. However there are common symptoms to be aware of.

Let’s meet someone living with systemic sclerosis to find out more.